200

Patients & Families

80+

Rare Diseases

100

Healthcare Professionals

10

Clinical & Expert Centers

WHO WE ARE

Rare Disease Ghana Initiative is the National Alliance Non-Governmental Organization leading advocacy, serving as a voice and coordinating care for persons living with undiagnosed, genetic and rare disorders in Ghana. Read more

Get Involved

Facts About Rare Diseases

Facts about rare diseases

Rare Disease Ghana Initiative brings together rare disease patient, caregivers, clinical experts, researchers, support groups, charitable organizations, health organizations, government institutions, and industry players to take action on rare diseases in Ghana and in collaboration with international alliances.

SUPPORT #RESOLUTION4RARE

Support the call for a UN Resolution on Addressing the Challenges of Persons Living with a Rare Disease (PLWRD) and their Families.

Sustainable Development Goals

Photos

GLOBAL RECOGNITIONS & ALLIANCES

Undiagnosed Diseases NetworkInternational alliance of patients organizationsIRDiRC