WHO WE ARE

Rare Disease Ghana Initiative is the National Alliance Non-Governmental Organization leading advocacy, serving as a voice and coordinating care for persons living with undiagnosed, genetic and rare disorders in Ghana.  Read more

Rare Disease Ghana Initiative brings together rare disease patient, caregivers, clinical experts, researchers,  support groups, charitable organizations, health organizations,  government institutions, and industry players to take action on rare diseases in Ghana and in collaboration with international alliances. 

SUPPORT #RESOLUTION4RARE

Support the call for a UN Resolution on Addressing the Challenges of Persons Living with a Rare Disease (PLWRD) and their Families.

Sustainable Development Goals

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