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OUR TEAM

Samuel Agyei Wiafe

Founder/Executive Director

Samuel Agyei Wiafe

Samuel Wiafe is a Clinical Psychologist in Ghana and an alumni of the University of Ghana.  He has received training in MPS Disorders, Fabry & Gaucher and other Metabolic Disorders from FYMCA Medicals LTD and also completed a comprehensive course in Human Genetics and Genomics as a selective participant in the 4th International Summit in Human Genetics and Genomics held at the National Institute of Health, Bethesda, USA by the National Human Genome Research Institute.

Samuel’s journey in the rare disease space started in early 2017 when he came came in touch with a family and was challenged to find support for this family. After realizing the challenges and the burden of living with undiagnosed and rare disease in Ghana and how rare diseases have been neglected in the healthcare system, he lead to the establishment of Rare Disease Ghana Initiative (RDGI) to champion the cause  and lead advocacy for rare diseases in Ghana.

Board of Directors

Our Board constitute people from various fields of study who are passionate about providing solutions to the rare disease community in Ghana.

Joseph Abenney-Yeboah

Chartered Accountant

Florence Naa Oyoo Quartey

Lawyer

Francisca Enu-Kwasi

Medical Doctor

Esther Akyeampong

Patient/Caregiver

Florence Ziniel

Caregiver

Dr. Elikplim Ahiable

Medical Doctor

Medical and Scientific Advisory Board

Prof. Ebenezer Badoe

Pediatric Neurologist, Department of Child Health, University of Ghana Medical School.

Dr. Yaw Asare-Aboagye

Executive Director, Biometrics, BioMarin Pharmaceutical Inc.

Dr. Anita Ghansah

Medical Geneticist, Noguchi Memorial Medical and Research Institute

Prof. Solomon Ofori-Acquah

Medical Geneticist, School of Biomedical and Allied Health Sciences, University of Ghana

Dr. Emmanuel K. Ameyaw

Pediatric Endocrinologist, KNUST Medical School

Emily Sheldon

Co-founder & CEO, African Health Innovation Center

Elenora Passer

Communications Manager, EJPRD and IRDiRC

Dr. Seth A. Wiafe

Public Health Specialist, Loma Linda University

Mrs. Charlotte Esi Myers

Clinical Psychologist, Lekma Hospital

Tanya Collins-Histed

CEO, International Gaucher Alliance

Lydia Seiders

Maryland State Ambassador for Rare Diseases, Rare Action Network (NORD)

Dr. Abena Tannor

Rehabilitation Specialist, Department of Family Medicine, Komfo Anokye Teaching Hospital

Sean Gordon

Founder, RareFundingTeam

Dr. Anyane-Yeboa Kwame

Clinical Geneticist, Columbia University Medical Center

Earl Patrick Cole

Founder & CEO, Perthes Kids Foundation; National Organization for Rare Disorders, NORD