Samuel Agyei Wiafe

Founder/Executive Director

Samuel Agyei Wiafe

Samuel Wiafe is an alumni of University of Ghana and  a Clinical Psychologist in Ghana.  He has received training in MPS Disorders, Fabry & Gaucher and other Metabolic Disorders from FYMCA Medicals LTD and also completed a comprehensive course in Human Genetics and Genomics as a selective participant in the 4th International Summit in Human Genetics and Genomics held at the National Institute of Health, Bethesda, USA by the National Human Genome Research Institute.

Samuel’s journey in the rare disease space started in early 2017 when he came in touch with a family and was challenged to find support for this family. After realizing the challenges and the burden of living with undiagnosed and rare disease in Ghana and how rare diseases have been neglected in the healthcare system, he lead to the establishment of Rare Disease Ghana Initiative (RDGI) to champion the cause  and lead advocacy for rare diseases in Ghana.

Board of Directors

Our Board constitute people from various fields of study who are passionate about providing solutions to the rare disease community in Ghana.

Joseph Abenney-Yeboah

Chartered Accountant

Florence Naa Oyoo Quartey


Dr. Francisca Enu-Kwasi

Medical Doctor

Esther Akyeampong


Florence Ziniel


Dr. Elikplim Ahiable

Medical Doctor

Seth Asafo

Clinical Psychologist

Dr. Emmanuela Amoako


Medical and Scientific Advisory Board

Prof. Ebenezer Badoe

Pediatric Neurologist, Department of Child Health, University of Ghana Medical School.

Dr. Yaw Asare-Aboagye

Executive Director, Biometrics, BioMarin Pharmaceutical Inc.

Dr. Anita Ghansah

Medical Geneticist, Noguchi Memorial Medical and Research Institute

Prof. Solomon Ofori-Acquah

Medical Geneticist, School of Biomedical and Allied Health Sciences, University of Ghana

Dr. Emmanuel K. Ameyaw

Pediatric Endocrinologist, KNUST Medical School

Dr. Anyane-Yeboa Kwame

Clinical Geneticist, Columbia University Medical Center

Dr. Seth A. Wiafe

Public Health Specialist, Loma Linda University

Mrs. Charlotte Esi Myers

Clinical Psychologist, Lekma Hospital

Emily Sheldon

Co-founder & CEO, African Health Innovation Center

Panyin Essilfie

Manufacturing Team Lead, Sanofi Genzyme