Samuel Agyei Wiafe
Samuel Agyei Wiafe
Samuel Wiafe is an alumni of University of Ghana and a Clinical Psychologist in Ghana. He has received training in MPS Disorders, Fabry & Gaucher and other Metabolic Disorders from FYMCA Medicals LTD and also completed a comprehensive course in Human Genetics and Genomics as a selective participant in the 4th International Summit in Human Genetics and Genomics held at the National Institute of Health, Bethesda, USA by the National Human Genome Research Institute.
Samuel’s journey in the rare disease space started in early 2017 when he came in touch with a family and was challenged to find support for this family. After realizing the challenges and the burden of living with undiagnosed and rare disease in Ghana and how rare diseases have been neglected in the healthcare system, he lead to the establishment of Rare Disease Ghana Initiative (RDGI) to champion the cause and lead advocacy for rare diseases in Ghana.
Board of Directors
Our Board constitute people from various fields of study who are passionate about providing solutions to the rare disease community in Ghana.
Florence Naa Oyoo Quartey
Dr. Francisca Enu-Kwasi
Dr. Elikplim Ahiable
Dr. Emmanuela Amoako
Medical and Scientific Advisory Board
Prof. Ebenezer Badoe
Pediatric Neurologist, Department of Child Health, University of Ghana Medical School.
Dr. Yaw Asare-Aboagye
Executive Director, Biometrics, BioMarin Pharmaceutical Inc.
Dr. Anita Ghansah
Medical Geneticist, Noguchi Memorial Medical and Research Institute
Prof. Solomon Ofori-Acquah
Medical Geneticist, School of Biomedical and Allied Health Sciences, University of Ghana
Dr. Emmanuel K. Ameyaw
Pediatric Endocrinologist, KNUST Medical School
Co-founder & CEO, African Health Innovation Center
Rare Special Powers
Dr. Seth A. Wiafe
Public Health Specialist, Loma Linda University
Mrs. Charlotte Esi Myers
Clinical Psychologist, Lekma Hospital
CEO, International Gaucher Alliance
Maryland State Ambassador for Rare Diseases, Rare Action Network (NORD)
Dr. Abena Tannor
Rehabilitation Specialist, Department of Family Medicine, Komfo Anokye Teaching Hospital
Dr. Anyane-Yeboa Kwame
Clinical Geneticist, Columbia University Medical Center
Earl Patrick Cole
Founder & CEO, Perthes Kids Foundation; Rare Action Network, (NORD)
Manufacturing Team Lead, Sanofi Genzyme