Goal 5: Achieve gender equality and empower all women and girls
Enshrined in the charter of the United Nations is the principle of equality between men and women. Unfortunately, discrimination against women and girls continues to be an issue that needs a stern response.
Research has proved that women living with a rare disease face more rejection in looking for a diagnosis and their pain is less seriously considered than that of men. But not only that, when a member of the family is affected by a rare disease, the primary carer role is most often assumed by the mother leading to a halt to professional life and inducing high levels of stress as well as physical and emotional strain.
By fighting for timely treatment as well as for appropriate social care, the NGO Committee for Rare Diseases aims to empower women and girls everywhere.