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2ND SYMPOSIUM HELD TO CREATE AWARENESS ON RARE DISEASES AND ORPHAN PRODUCTS

This year marked the 13th International Rare Disease Day and the 3rd in Ghana. The event was an extremely successful one largely due to the

Sample Category Posts

2ND SYMPOSIUM HELD TO CREATE AWARENESS ON RARE DISEASES AND ORPHAN PRODUCTS

This year marked the 13th International Rare Disease Day and the 3rd in Ghana. The event was an extremely successful one largely due to the

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About Rare Daily

Rare Daily gathers news from the rare disease community in Ghana, across Africa and International community.

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2ND SYMPOSIUM HELD TO CREATE AWARENESS ON RARE DISEASES AND ORPHAN PRODUCTS

This year marked the 13th International Rare Disease Day and the 3rd in Ghana. The event was an extremely successful one largely

RARE DISEASE GHANA INITIATIVE AND ASSOCIATION INTERNATIONAL SCHOOL COLLABORATES TO HONOR RARE DISEASES DAY 2020

This year marked the 13th International Rare Disease Day and the 3rd in Ghana. The event was an extremely successful one largely

Rare Disease Ghana Initiative Launches A Family Support Network for Rare Diseases in Ghana

Most rare disease patients and their families report feeling isolated and rejected. Hence Rare Disease Ghana Initiative has established the

What We Do

Awareness/ Education/ Training

Rare Disease Ghana Initiative seeks to increase knowledge on rare diseases in Ghana. We engage in several activities that increase the awareness of rare diseases among professionals as well as the general public.

Advocacy

Rare Disease Ghana Initiative seeks to be the voice of people living with rare diseases in Ghana. We ensure that the rights and privileges of the people affected by rare diseases are protected and patients have access to basic services need to improve their wellbeing and quality of life.

Care/Support

Rare Disease Ghana Initiative seeks to coordinate the available care and support to improve the wellbeing and quality of life of Persons affected by rare diseases in Ghana.

Research

RDGI seeks to promote and engage in research on rare diseases. We seek to increase professional and academic interest in rare disease research.

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Values

RESPECT & DIGNITY for Human Life 

EQUITY in Healthcare and Social services 

Patient Centricity

ACCEPTANCE and INCLUSION

Patient EMPOWERMENT and ENGAGEMENT

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