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About Rare Daily

Rare Daily gathers news from the rare disease community in Ghana, across Africa and International community.

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Recent Posts

Rare Disease Ghana Initiative donates to Department of Child Health of Korle-Bu Teaching Hospital to support care for genetic and rare disorders in Ghana.

The Rare Disease Ghana Team on the 25th Sept, 2020 paid a courtesy call to the Department of Child Health

RARE DISEASE GHANA INITIATIVE CAMPAIGNS FOR SCREENING OF NEWBORNS FOR INHERITED CONGENITAL ANOMALIES.

Globally, the month of September is recognized as Newborn screening awareness month and marked as such. This year, Rare Disease

What We Do

Awareness/ Education/ Training

Rare Disease Ghana Initiative seeks to increase knowledge on rare diseases in Ghana. We engage in several activities that increase the awareness of rare diseases among professionals as well as the general public.

Advocacy

Rare Disease Ghana Initiative seeks to be the voice of people living with rare diseases in Ghana. We ensure that the rights and privileges of the people affected by rare diseases are protected and patients have access to basic services need to improve their wellbeing and quality of life.

Care/Support

Rare Disease Ghana Initiative seeks to coordinate the available care and support to improve the wellbeing and quality of life of Persons affected by rare diseases in Ghana.

Research

RDGI seeks to promote and engage in research on rare diseases. We seek to increase professional and academic interest in rare disease research.

Read More About Rare Disease Ghana Initiative

Values

RESPECT & DIGNITY for Human Life 

EQUITY in Healthcare and Social services 

Patient Centricity

ACCEPTANCE and INCLUSION

Patient EMPOWERMENT and ENGAGEMENT

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