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Rare Disease Ghana Initiative Launches A Family Support Network for Rare Diseases in Ghana

Most rare disease patients and their families report feeling isolated and rejected. Hence Rare Disease Ghana Initiative has established the Ghana Rare Family

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Rare Disease Ghana Initiative Launches A Family Support Network for Rare Diseases in Ghana

Most rare disease patients and their families report feeling isolated and rejected. Hence Rare Disease Ghana Initiative has established the Ghana Rare Family

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Rare Disease Ghana Initiative Launches A Family Support Network for Rare Diseases in Ghana

Most rare disease patients and their families report feeling isolated and rejected. Hence Rare Disease Ghana Initiative has established the

Rare Disease Ghana Initiative Collaborates with ME CFS South Africa and Impact Hub Accra for the MillionMissing event.

Millionsmissing is a global campaign for Myalgic Encephalomyelitis (ME) health equality. Lead by #MEAction, the first global protest took place in

Students of Multikids Academy Paint their faces to support Rare Disease Day 2019

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day

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What We Do

Awareness/ Education/ Training

Rare Disease Ghana Initiative seeks to increase knowledge on rare diseases in Ghana. We engage in several activities that increase the awareness of rare diseases among professionals as well as the general public.

Advocacy

Rare Disease Ghana Initiative seeks to be the voice of people living with rare diseases in Ghana. We ensure that the rights and privileges of the people affected by rare diseases are protected and patients have access to basic services need to improve their wellbeing and quality of life.

Care/Support

Rare Disease Ghana Initiative seeks to coordinate the available care and support to improve the wellbeing and quality of life of Persons affected by rare diseases in Ghana.

Research

RDGI seeks to promote and engage in research on rare diseases. We seek to increase professional and academic interest in rare disease research.

Read More About Rare Disease Ghana Initiative

Values

RESPECT & DIGNITY for Human Life 

EQUITY in Healthcare and Social services 

Patient Centricity

ACCEPTANCE and INCLUSION

Patient EMPOWERMENT and ENGAGEMENT

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