On the 28th of February, 2019, Rare Disease Ghana Initiative in collaboration with West African Genetic Medicine Centre with Support from Sickle Cell Disease Genomics Network of Africa (SickleGenAfrica) organised a symposium on Genomics and Rare Diseases in honor of Rare Disease Day 2019. The event which was held atContinue Reading

Knowledge on rare diseases and related disorders are lacking among medical professionals across Africa. Rare Diseases are not integral part of the training of medical professionals in developing countries like most African countries hence making it difficult to identify, diagnose and manage rare diseases.  Rare Disease ghana Initiative has collaboratedContinue Reading

Rare disease day is a global event held to raise awareness and support for rare diseases. It is mostly held on the last day of February (so 28 on non-leap years and 29th on Leap years) and promoted by EURORDIS, an international patient-driven alliance of rare disease patient organizations. This yearContinue Reading