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Rare Disease Ghana Daily
News from the Rare Disease community in Ghana
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News Portal of Rare Disease Ghana Initiative

Psalmy

Rare Disease Ghana Initiative donates to Department of Child Health of Korle-Bu Teaching Hospital to support care for genetic and rare disorders in Ghana.

2020-10-01
On: October 1, 2020

The Rare Disease Ghana Team on the 25th Sept, 2020 paid a courtesy call to the Department of Child Health of Korle-Bu Teaching Hospital (KBTH), where they made a donation of stoma bags donated by ONEin5000 Foundation, a blood checker ammonia device provided by Care Beyond Diagnosis (CBD) as partContinue Reading

RARE DISEASE GHANA INITIATIVE CAMPAIGNS FOR SCREENING OF NEWBORNS FOR INHERITED CONGENITAL ANOMALIES.

2020-10-01
On: October 1, 2020

Globally, the month of September is recognized as Newborn screening awareness month and marked as such. This year, Rare Disease Ghana Initiative the non-profit organization championing the cause of individuals with rare diseases in the country, led an awareness campaign on the various congenital conditions that present at birth andContinue Reading

ClinCapture Inc Donates Captivate Live Platform to support the National Registry for Undiagnosed, Genetic and Rare Diseases in Ghana.

2020-09-30
On: September 30, 2020

Continue Reading

Rare Disease Ghana Initiative Marks International Day of World’s Indigenous People 2020 and Launch Lyfe Language Project in Ghana

2020-08-18
On: August 18, 2020

  Rare Disease Ghana Initiative in collaboration with Project Y (an initiative of the Genomic Unit of the Western Australian Department of Health) embarked on a campaign to promote awareness on the need to prioritize Health Care for Indigenous people as part of the plans to mark the  International DayContinue Reading

2ND SYMPOSIUM HELD TO CREATE AWARENESS ON RARE DISEASES AND ORPHAN PRODUCTS

2020-03-30
On: March 30, 2020

This year marked the 13th International Rare Disease Day and the 3rd in Ghana. The event was an extremely successful one largely due to the high level of support and enthusiastic participation from our various partners and stakeholders. The Rare Disease program was a three (3) day event with the first two daysContinue Reading

RARE DISEASE GHANA INITIATIVE AND ASSOCIATION INTERNATIONAL SCHOOL COLLABORATES TO HONOR RARE DISEASES DAY 2020

2020-03-30
On: March 30, 2020

This year marked the 13th International Rare Disease Day and the 3rd in Ghana. The event was an extremely successful one largely due to the high level of support and enthusiastic participation from our various partners and stakeholders. The Rare Disease program was a three (3) day event with the first two days targetedContinue Reading

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INTERNATIONAL DAY OF PERSONS WITH DISABILITIES : WHAT HAS THIS GOT TO DO WITH RARE DISEASES

By: admin
On: December 3, 2020

‘Disabilities is an umbrella term, covering impairments, activity limitations, and participation restrictions.

Rare Disease Ghana Initiative donates to Department of Child Health of Korle-Bu Teaching Hospital to support care for genetic and rare disorders in Ghana.

By: Psalmy
On: October 1, 2020

The Rare Disease Ghana Team on the 25th Sept, 2020 paid a

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INTERNATIONAL DAY OF PERSONS WITH DISABILITIES : WHAT HAS THIS GOT TO DO WITH RARE DISEASES

In: Uncategorized

Rare Disease Ghana Initiative donates to Department of Child Health of Korle-Bu Teaching Hospital to support care for genetic and rare disorders in Ghana.

In: Clinical Care, Patient Care, Patient Support

RARE DISEASE GHANA INITIATIVE CAMPAIGNS FOR SCREENING OF NEWBORNS FOR INHERITED CONGENITAL ANOMALIES.

In: Advocacy, Awareness campaigns, Education, Events

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