The Rare Disease Ghana Team on the 25th Sept, 2020 paid a courtesy call to the Department of Child Health of Korle-Bu Teaching Hospital (KBTH), where they made a donation of stoma bags donated by ONEin5000 Foundation, a blood checker ammonia device provided by Care Beyond Diagnosis (CBD) as partContinue Reading
Globally, the month of September is recognized as Newborn screening awareness month and marked as such. This year, Rare Disease Ghana Initiative the non-profit organization championing the cause of individuals with rare diseases in the country, led an awareness campaign on the various congenital conditions that present at birth andContinue Reading
Rare Disease Ghana Initiative in collaboration with Project Y (an initiative of the Genomic Unit of the Western Australian Department of Health) embarked on a campaign to promote awareness on the need to prioritize Health Care for Indigenous people as part of the plans to mark the International DayContinue Reading
This year marked the 13th International Rare Disease Day and the 3rd in Ghana. The event was an extremely successful one largely due to the high level of support and enthusiastic participation from our various partners and stakeholders. The Rare Disease program was a three (3) day event with the first two daysContinue Reading
This year marked the 13th International Rare Disease Day and the 3rd in Ghana. The event was an extremely successful one largely due to the high level of support and enthusiastic participation from our various partners and stakeholders. The Rare Disease program was a three (3) day event with the first two days targetedContinue Reading
