Globally, the month of September is recognized as Newborn screening awareness month and marked as such. This year, Rare Disease Ghana Initiative the non-profit organization championing the cause of individuals with rare diseases in the country, led an awareness campaign on the various congenital conditions that present at birth and
Rare Disease Ghana Initiative in collaboration with Project Y (an initiative of the Genomic Unit of the Western Australian Department of Health) embarked on a campaign to promote awareness on the need to prioritize Health Care for Indigenous people as part of the plans to mark the International Day
Millionsmissing is a global campaign for Myalgic Encephalomyelitis (ME) health equality. Lead by #MEAction, the first global protest took place in May 2016. By September, 2016, it had grown to 24 cities. This year, the movement has grown – to over 100 cities across the world including Ghana. ME (commonly known
Rare Disease Ghana Initiative (RDGI) has collaborated with Beyond The Diagnosis formally Rare Disease United Foundation to enroll eligible patients unto the “Beyond The Diagnosis Art Exhibit”. The focus of the Beyond Diagnosis Art Exhibit is to increase research and raise awareness of rare diseases within the medical community through
On the 28th of February, 2019, Rare Disease Ghana Initiative in collaboration with West African Genetic Medicine Centre with Support from Sickle Cell Disease Genomics Network of Africa (SickleGenAfrica) organised a symposium on Genomics and Rare Diseases in honor of Rare Disease Day 2019. The event which was held at
Chronic Diseases are increasing becoming a burden in Ghana. In other to increase awareness and support for chronic illnesses of which majority of rare diseases fall under, Rare Disease Ghana Initiative lighted up the building of Impact Hub Accra located at Osu, Arko-Adjei on May 17th 2018.