Globally, the month of September is recognized as Newborn screening awareness month and marked as such. This year, Rare Disease Ghana Initiative the non-profit organization championing the cause of individuals with rare diseases in the country, led an awareness campaign on the various congenital conditions that present at birth andContinue Reading
Rare Disease Ghana Initiative in collaboration with Project Y (an initiative of the Genomic Unit of the Western Australian Department of Health) embarked on a campaign to promote awareness on the need to prioritize Health Care for Indigenous people as part of the plans to mark the International DayContinue Reading
This year marked the 13th International Rare Disease Day and the 3rd in Ghana. The event was an extremely successful one largely due to the high level of support and enthusiastic participation from our various partners and stakeholders. The Rare Disease program was a three (3) day event with the first two daysContinue Reading
This year marked the 13th International Rare Disease Day and the 3rd in Ghana. The event was an extremely successful one largely due to the high level of support and enthusiastic participation from our various partners and stakeholders. The Rare Disease program was a three (3) day event with the first two days targetedContinue Reading
Millionsmissing is a global campaign for Myalgic Encephalomyelitis (ME) health equality. Lead by #MEAction, the first global protest took place in May 2016. By September, 2016, it had grown to 24 cities. This year, the movement has grown – to over 100 cities across the world including Ghana. ME (commonly knownContinue Reading
On the 28th of February, 2019, Rare Disease Ghana Initiative in collaboration with West African Genetic Medicine Centre with Support from Sickle Cell Disease Genomics Network of Africa (SickleGenAfrica) organised a symposium on Genomics and Rare Diseases in honor of Rare Disease Day 2019. The event which was held atContinue Reading
Chronic Diseases are increasing becoming a burden in Ghana. In other to increase awareness and support for chronic illnesses of which majority of rare diseases fall under, Rare Disease Ghana Initiative lighted up the building of Impact Hub Accra located at Osu, Arko-Adjei on May 17th 2018.Continue Reading
