International

Rare Disease Ghana Initiative Assists to Enroll Patients on Beyond The Diagnosis Art Exhibits

On: March 19, 2019

Rare Disease Ghana Initiative (RDGI) has collaborated with Beyond The Diagnosis formally Rare Disease United Foundation to enroll eligible patients unto the “Beyond The Diagnosis Art Exhibit”. The focus of the Beyond Diagnosis Art Exhibit is to increase research and raise awareness of rare diseases within the medical community throughContinue Reading

Rare Disease Ghana Initiative collaborates with FYMCA Medicals LTD to train Doctors in Africa on Rare Diseases

On: March 13, 2019

Knowledge on rare diseases and related disorders are lacking among medical professionals across Africa. Rare Diseases are not integral part of the training of medical professionals in developing countries like most African countries hence making it difficult to identify, diagnose and manage rare diseases. Rare Disease ghana Initiative has collaboratedContinue Reading

Rare Disease Ghana Initiative Launches A Family Support Network for Rare Diseases in Ghana

By: admin

On: April 17, 2019

Most rare disease patients and their families report feeling isolated and rejected.

Rare Disease Ghana Initiative Collaborates with ME CFS South Africa and Impact Hub Accra for the MillionMissing event.

By: admin

On: April 4, 2019

Millionsmissing is a global campaign for Myalgic Encephalomyelitis (ME) health equality. Lead

International

Rare Disease Ghana Initiative Launches A Family Support Network for Rare Diseases in Ghana

Rare Disease Ghana Initiative Collaborates with ME CFS South Africa and Impact Hub Accra for the MillionMissing event.

Students of Multikids Academy Paint their faces to support Rare Disease Day 2019