Most rare disease patients and their families report feeling isolated and rejected. Hence Rare Disease Ghana Initiative has established the Ghana Rare Family Network as a support group under the Rare Disease Ghana Initiative to provide a sense of community and emotional support to families living with rare diseases in
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to
Chronic Diseases are increasing becoming a burden in Ghana. In other to increase awareness and support for chronic illnesses of which majority of rare diseases fall under, Rare Disease Ghana Initiative lighted up the building of Impact Hub Accra located at Osu, Arko-Adjei on May 17th 2018.