Millionsmissing is a global campaign for Myalgic Encephalomyelitis (ME) health equality. Lead by #MEAction, the first global protest took place in May 2016. By September, 2016, it had grown to 24 cities. This year, the movement has grown – to over 100 cities across the world including Ghana.
ME (commonly known as “Chronic Fatigue Syndrome”) is a systemic neuroimmune disease characterized by post-exertional malaise (a severe worsening of symptoms after even minimal exertion). It causes dysregulation of both the immune system and the nervous system. The effects of ME are devastating enough to leave 25% of patients housebound or bedbound and an estimated 75% unable to work. ME affects 15 to 30 million around the world, yet this disease remains invisible and people are missing from their own lives.
Rare Disease Ghana Initiative and Impact Hub Accra stands in solidarity with The ME CFS Foundation South Africa and MEAction during the #MillionMissing event which was held on the 12th May, 2018. This happens to be the first time such an event was done in Ghana. To show their solidarity, RDGI did a solidarity video which was shared over social media. Follow this link to watch the solidarity video: https://web.facebook.com/MEActNet/videos/2100173440265051/?t=0