A Resource and Information Hub for Rare Diseases in Ghana
Orphan Zone is a one-stop shop style service center designed for people living with rare diseases and their families. Orphan Zone is complementary to health and social care services which creates a bridge between various stakeholders, services and professionals providing health care, social care, and social support – including mental health support, rehabilitation, palliative care, insurance, education and employment.
We provide a platform for addressing the gaps in the entire continuum of rare disease management from increased knowledge and awareness to early diagnosis and prevention to the best to best practice treatment and care to community engagement to access to best treatments and comprehensive research.
Orphan Zone aims at accelerating the development and implementation of holistic high quality care pathways for people living with a rare disease to contribute to raise standards of care and support.
Information/ Education
RDGI works to increase knowledge on rare diseases in Ghana. We engage in several activities that increase the awareness of rare diseases among professionals, policy makers, families and the general public.
Medical Aid & Services
RDGI people affected by rare diseases have access to basic medical services need to improve their wellbeing and quality of life. We provide resources to aid timely diagnosis and treatment of rare diseases in Ghana.
Community and Social Services
RDGI connects rare disease families together to build a sense of community. RDGI connects families to the available community care and support services.
Research
RDGI seeks to promote and engage in innovative research on rare diseases that leads to novel interventions.
Contact US
Rare Disease Ghana Initiative
F393 Fourth Otswe St, Accra
+233 55 271 6011/ +233 500017050
